A movement of patients, carers and relatives

Harnessing the patient voice to build confidence in the use of patient data to save lives and improve outcomes


A trusted patient voice on patient data - organisations that we formally engage with

As a trusted patient voice on patient data, we engage with a variety of organisations.  Our work is not about providing approval or endorsement, rather our Members use their lived experience to provide views on the use of patient data.

We have a clear set of Engagement Criteria, which have been defined by our membership, which describe the principles by which we engage with other external bodies.  

Read our Standards for Engagement with External Bodies here

As a priority, the Secretariat always strives to ensure that our Members are reimbursed for regular engagement work.  For some engagement arrangements, use MY data as an organisation receives a contributory payment, which goes towards the running of use MY data.


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