A trusted patient voice on patient data - organisations that we formally engage with
As a trusted patient voice on patient data, we engage with a variety of organisations. Our work is not about providing approval or endorsement, rather our Members use their lived experience to provide views on the use of patient data.
We have a clear set of Engagement Criteria, which have been defined by our membership, which describe the principles by which we engage with other external bodies.
As a priority, the Secretariat always strives to ensure that our Members are reimbursed for regular engagement work. For some engagement arrangements, use MY data as an organisation receives a contributory payment, which goes towards the running of use MY data.