What is public benefit?

The journey towards effective and efficient health data research - a personal perspective

Trusted Research Environment - a name to trust?

Global Ethics Day, Public Engagement and the Ethical Use of Data

Education outcomes in young people with diabetes: innovative involvement and governance to support p

Healthcare systems must get fair value for their data

Health data - building trust

UK Biobank: why won`t GPs share data?

Healthcare systems must get fair value for their data

Establishing a colorectal cancer research database from routinely collected health data

The tension between the promises and realities of data use in health and social care

TREs [Trusted Research Environments] in the NHS – how health data sharing is saving lives

Stories from the Heart

Explaining patient data in an accessible way

Data making a difference: the world-leading data bank behind life-changing research.

Openness is vital to future of clinical trials

Should patients own their health records?

When is your data anonymous

Dr Emma Yhnell - born to be a researcher

Celebrating young people making a difference in health research.

How can we support adoption of the data use register standard

Mind the Gap: The importance of measuring inequalities in healthcare

An app with every drug?

The benefits of a personal health record

Meet the Rhondda Valley GP fighting antibiotic resistance with health data

Tokenism: Seeing it. Fixing it. Perspectives from IMHA Patient Partners.

Reflections on why I got involved in research and why it matters to me

The importance of transparency & openness in research data to drive patient benefit – Examples fro

The Covid survey and your data – the ONS [Office for National Statistics] wants health records for

Making transparency happen

Building informed consent – the importance of trust and transparency in safe health data sharing

Looking back over an extraordinary year: the 2020 CF Registry Report

These patients make sure your health data is handled with care

CO CONNECT A laypersons perspective on using health data, building trust and the benefits of sharing

Whatever happened to the GP data plan? Time to hear a positive story about sharing medical records

Health data: when children reach the age of consent

Research helps me take back control

COVID-19 projects funded by UKRI’s national core studies to use SAIL Databank.

How do you do pioneering research without ever seeing the data

How the R number took over our lives — and what we can learn from it

Meet Noni Anigbo, DATA-CAN’s first intern through the Black Interns Initiative.

Health data will pave the route to patient empowerment – so long as it is conducted and managed in

What’s so good about trusted research environments (TREs) anyway?

A response to Realising the full potential of data-enabled trials in the UK: a call for action

Turning patient engagement into the ‘new normal

A reflection on the potential of data-enabled trials

PIONEER’s public conscience – reflections on the first year of the Data Trust Committee

Why informed consent must be at the heart of medical ethics and regulation

The importance of Patient and Public Involvement (PPI) in healthcare research and transformation.

How the HDR UK Public Advisory Board are driving involvement of patients and the public in data acce

Demonstrating trustworthiness and maximising public benefit: ADR UK Public Engagement Strategy 2021

Aron’s story: how I transform health research in Wales as a student

The what and why of trusted research environments

DATA-CAN: a co-created cancer data knowledge network to deliver better outcomes and higher societal

Fairness: The importance of diversity in health data for creating better, fairer treatment for all

The importance of listening and changing

Living with

What’s the difference between the national collection of GP Data for Planning and Research and the

Who should I involve in my research and why? Patients, carers or the public?

PIONEER and the Health Data Research Hubs – the story so far

The benefits of community mental health standards

Figuring it out - Reflections on Patient/Public Involvement with Numbers, Statistics and Data.

Primary Care Data – Raw codes to meaningful outputs

Finding the vulnerable before COIVD does

Behind the scenes: Expanding the COVID-19 dashboard

Researcher Experience

Fighting the Pandemic With Data: Why cancer data has never been so important by

Beyond trust: collective understanding of the common good and patient data

Wales’ life-changing rare disease research

The INSIGHT Data Trust Advisory Board: data access criteria

Using real-time data and predictive analytics to improve cancer outcomes

What are data institutions and why are they important?

Understanding the value of Healthcare data.

Understanding the value of Healthcare data.

The Case for Cohorts – Revealing the ‘Before and After’ Response to COVID-19

All data matters and all matters data – how Health Data Research hubs are unlocking the power of d

Using health data during the pandemic: the need for an accurate risk prediction tool on the frontlin

Blind data: how do patients really feel about anonymised health data use?

All data matters and all matters data

How is additional information in Summary Care Records being used?

Using data to combat bias against ethnic minorities

Are data repositories the future? An eCRUSADers conversation with DataLoch

Why Caldicott Principles and Caldicott Guardians are still relevant in 2020

The future of healthcare: is it all about data?

What we mean by trustworthy use of patient data

Protecting and valuing our healthcare data

Distributing access not data: monitoring who can access patient data - What does the future for acce

SAIL Databank - health data research during a global pandemic

eCRUSADers: one year on

Lessons from setting up the INSIGHT Data Trust Advisory Board

Introducing NHSXs patient and public voice partners

Transparent Health Research whats in it for the public

The value of good data to patients

Lord Freyberg on the social and economic potential of healthcare data

People Make Data: Part 3

Why are we waiting for Better Outcomes?

The importance of data in fighting disease during the pandemic

How PIES [Public Involvement and Engagement Senate] helped to improve understanding about data shari

One Cold and Wet Night late in January 2020

Without Charities

The COVID-19 dashboard: bringing together data and statistics in one place

Researcher Experience: Dr Drew Altschul.

Doing good with data: what does good look like when it comes to data stewardship?

Making a Case for Data Sharing in Europe

Citizen’s data, healthcare and trust

From diagnostic odyssey to involvement odyssey – an emotional journey.

Who owns patient data? The answer is not that simple

Using art to engage with people often not involved in research development and production

COVID-19 data dashboards: From prototypes to a solution serving thousands in weeks.

Follow the Science, Follow the Data: the importance of using real-time data to respond to the effect

There is no single truth about Covid-19

Data literacy: How to skill up the nation

Key take away messages for early career researchers

Patient and public involvement in covid-19 policy making

Ensuring ethnic diversity in COVID-19 research

Research Data Scotland: A conversation with Roger Halliday, Chief Statistician (Scottish Government)

People Make Data

New Research in Oesophageal and Gastric Cancers

Challenging Inequalities in Involvement for Black and Minority Ethnic Communities in Research

Data in the time of Covid-19

Data and Covid-19: why standards matter.

Sharing health data for public good: a challenge rooted in trust and legitimacy.

Sweeping aside patient involvement during pandemic was too easy.

Back to the future? Patient participation in general practice during covid-19

Using standards to make care safer and more personalised.

The Issue with Tissue: towards a national registry of human tissue sampling.

Contact tracing app: implications for medical research and patients

The researchers’ experience when attempting to access health data for research

The Whys and Hows of applying to the Public Benefit and Privacy Panel for Health and Social Care (PB

Reliable, real-world data on excess mortality are required to assess the impact of covid-19

Reflections of a new Director for Public Voice.

COVID-19, Cancer and Comorbidities: A Deadly Triumvirate

We’re all in this together’ – what does this mean for COVID-19 research?

Information Commissioner sets out new priorities for UK data protection during COVID-19 and beyond

Public acceptability of data sharing for research: Trust, security and public interest

Easier said than done: the challenge of transparency during Covid-19

The human side of health data

The toll beyond the covid-19 deaths

The toll beyond the covid 19 deaths.

Why safety will be paramount as digital care booms

Light amid the gloom

A doctor’s view from the COVID frontline

The views of patients and the public should be included in policy responses to covid-19

The power of data in a pandemic.

Data-driven responses to coronavirus are only as good as the trust we place in them