A movement of patients, carers and relatives
Harnessing the patient voice to build confidence in the use of patient data to save lives and improve outcomes
Read about the development and implementation of our Patient Data Citation
We host regular events examining patient data topics, as requested by our Members.
We update our Membership on a weekly basis, with a recent patient data items and engagement opportunities
Our unique status as a patient-led movement has enabled us to cut across the ‘worry spectrum’ and bring different views together
A use MY data survey across Primary Care
The National Data Opt-out and what it means for cancer patients
‘What-if’ paper on patients’ rights and responsibilities
Joint campaign on low use of tissue samples
use MY data members provide expert input into a range of activities & bodies
Uniquely, as a patient movement, we have coordinated responses to several national consultations, directly using the words of our members. Read more here.