National Patient Data Day 2025

Please join us in Leeds on 24 June 2025 for the inaugural use MY data National Patient Data Day Conference (#NPaDD2025) and the launch of the first National Patient Data Awareness Day. 

 ** Register now **  

NPaDD is a patient data conference with a difference. It is patient-designed and patient-driven.  NPaDD will bring together a live audience of 250 patients, relatives and carers, alongside a diversity of stakeholders in the patient data world, including health professionals, researchers, data controlling bodies, commercial data users, policy organisations, and media. 

Conference sessions include :

• How do we achieve a National Health Data Service for the UK?
• How can we influence the media to publish stories that celebrate using our patient data?
• Establishing a UK-wide research data environment for rare diseases
• Data and inequalities
• Big data for complex disease
• Patient data roundtables
• Involving people in their data choices
• Health data literacy in younger people
• Patient data soapbox
• Me, my data and (A)I
• and lots of opportunity for networking and learning

Speakers include:

Dr Nicola Byrne
National Data Guardian for Health & Adult Social Care in England

Rory Cellan-Jones
Independent journalist
use MY data Member

Professor Pearse Keen
Professor of Artificial Medical Intelligence at UCL Institute of Ophthalmology
Consultant ophthalmologist at Moorfields Eye Hospital NHS Foundation Trust
Director of the INSIGHT health data research hub programme, based at Moorfields Eye Hospital

Emma Kinloch
Founder, Salivary Gland Cancer UK
use MY data Member

Ming Tang
Chief Data and Analytics Officer, NHS England
Co-chair, Data & technology, 10 Year Health Plan working group

Why you should attend

NPaDD is unique. It is the first patient data conference of its kind where patients set the agenda. The conference will drive forward our vision of every patient in the UK willingly giving their data to support medical research and their own care. It will champion the use of patient data across the four nations of the UK and will promote:

• use MY data’s influential work to promote the use of patient data to improve outcomes and save lives
• patient voices to shape the patient data agenda, through a strategy of positive engagement

Look forward to . . .

• Keynote speakers
• Roundtables
• Panel discussions
• Patient Data Soapbox
• Networking on Data Street

Sponsorship opportunities

There are still opportunities for sponsors to play a pivotal role in the launch of this unique patient data event, at a critical moment for the NHS.  Your support could help to underpin event running costs, enable patients, relatives and carers to attend (ensuring they are not financially disadvantaged) and help to transform the patient data landscape.

To find out more, please contact Georgina, our Event Manager georgina@usemydata.org.uk.